This week has been filled with lots of naps and recovery. I will feel good and have a busy day and the next day is pretty much a right off with the amount of sleep that I require but that is to be expected. My doctor warned me that my tiredness will get worse as we are now decreasing my prednisone (this is the second of three immunosuppressants that we are weaning off) but I'm excited for these little steps.
The immunosuppressants that I am on is due to the acute Graft vs Host (aGVHd) disease that I developed shortly after transplant. My primary caregivers (Mike and my best friend Joanne) knew that I was had severe aGVHd but it wasn't until I had to update some of my clinical trial documents last week that I found out that it was Grade 3 aGVHd (out of a 0-4 scale). The doctors didn't know what they were going to do if these three drugs did not work as the mortality rate for Grade 3 and 4 is very high so I consider myself immensely lucky to be here today.
So how does this relate to Kung Fu? If I waited for the right time to do something, I would probably still be waiting to do anything. My personal goals this year are to help me with mortality and gratitude. Tai Chi, meditation, readings on these areas are ways that will assist me to continue to move forward, slow as it may be. The other personal goal is a community project. Something that I can do that will assist others. How do I use the precious time that I have been given to make a difference to others?
If I waited until I was "better", I would be missing out on the time that I have available now. It might not be a lot of time but I have have some time so why not use it. I have started my brain dump on things that interest me for my community project and reached out to some knowledgable resources to bounce ideas around.
I will focus more on my community project on the next post but the take away from this post is "NOW is the right time". Don't wait until you "think" you are ready, figure out how you can proceed with what you have right now.
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